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Showing posts from October, 2015

“I’m sorry. Headaches aren't fun, are they?”

…My response? "YOU REALLY THINK I WOULD BE LETTING A “HEADACHE” KILL 9 DAYS OF MY LIFE, INCLUDING WORK AND TIME WITH MY KIDS??" *** DISCLAIMER (and I don't just say this because the post is long): There are lots of curses and capitalized words. Continue at your own risk. *** Some of you have asked how I am doing, and in an attempt to not use my eyes and brain too much, I haven’t answered. I'm sorry if that has worried or offended people. I'm just doing what I can do. So I figured I’d type this up, send it out collectively, and I won’t have to answer over and over again (with the exception that I miraculously get better and actually CAN type individual responses. In which case, I would gladly do so.) WARNING : some of you (if not most) will find this offensive. If you’re one of those people, then stop reading and don’t blame me for writing something that offends you. Because, truthfully and to the core, I don’t care. I can’t anymore. I don’t have the capaci

When Doctors Can't See Past Themselves

I just need to vent. Take that as your warning, I guess. The venting is toward my body, but mostly toward doctors. More precisely, MY doctors. At Kaiser. Yeah, I'm calling Kaiser out. I'll get to that in a bit.  I am so, so exhausted of struggling through pain. I've had to just "deal with it" since moving back to Colorado last December. Most the time, I can deal with it; I've learned how to deal with it over time, and accepted it as a part of my daily life. I suppose anyone who struggles with chronic pain has to reach that point. It took me two years to accept it. Honestly, that first year I got it, I never thought I would accept it. So that's definitely something. But, holy shit, does it interfere with my life sometimes. Holy shit, does it take all my spoons. Times when, like this weekend (and past week, really), EVERYTHING hits all at once. Because autoimmune disorders do that. Everything is affected by them. Just to list this weekend's specific pro